Our Vision

Our vision is rooted in the Four Noble Truths, guiding us with compassion, understanding, and resilience as we strive to illuminate the path to hope, healing, and support for those affected by rare diseases

Duhkham - The Truth of Suffering:

To understand different disease and its symptoms,diagnostics,statistics,severity,
regional prevalences due to food habits,lifestyle, cultural influences, religious influences,water and other contaminant living conditions.
Gender-based prevalence due to hormonal differences and imbalances, gender inequality, sexual habits and hygiene, and living conditions.

Duhkhasamudayah - The Truth of the Cause of Suffering:

To Understand Causability like genetic mutation, addition ,deletion, upregulation, insertion, repetitions of nucleotide sequences .

Duhkhanirodhah - The Truth of the Cessation of Suffering:

As we know that there is no known therapeutic intervention available for most of the rare diseases.we intervene in scientific research to find specific solution to solve genetic problems.

Duakhanirodhamargah - The Truth of the Path to the Cessation of Suffering:

As we know not a single path to solve rare genetic problems exist in the world ,so there is only way to intervene in different way to make these diseases less painful and hence our interventions are as follows :-

1. Raising Awareness
2. Providing Reliable Information
3. Building a Support Community
4. Advocating for Research and Funding
5. Connecting Patients with Clinical Trials
6. Educating Healthcare Professionals
7. Facilitating Advocacy and Policy Change
8. Promoting Early Diagnosis
9. Highlighting Success Stories
10. Creating a Centralized Resource Hub